Events, etc.

“Never doubt that a small group of thoughtfully committed citizens can change the world. Indeed, it's the only thing that ever has.” by Dr. Margaret Mead

Take part in one of our fundraising events or organize one of your own – however you’d like to get involved there are plenty of ways you can help us support the development and approval of a treatment for this fatal disease.

We are developing a wide range of exciting events that give you the opportunity to support our vision to cure AGU in a fun, easy yet symbolic way.

Below is a list of our upcoming events. If you’d like more information, please call us at (504) 408-1126
   
    Upcoming events

Past events 1


www.raretrait.com/run

Event 2
5K Run and Family Fun Day



Event 3

October 17, 2015
Rare Golf Tournament
Bayou Barriere
Belle Chasse, LA
11:00 Registration
Noon Shotgun Start



April 19, 2015
"Rare Affair" Party
The Columns Hotel on St. Charles Ave
 5 p.m. to 8 p.m.


April 5th, 2014
5K Run and Family Fun Day
Cypress Park in Belle Chasse, LA



June 21, 2014 (originally planned for May 10th, 2014)
Charity Auction and Dinner
 5 p.m. to 8 p.m.



June 19, 2014
Classical music and Jazz Concert 
Sorbonne amphitheater
Paris, France



October 11, 2014
Rare Golf Tournament
Bayou Barriere
Belle Chasse, LA