Rare Trait Hope Fund


Rare Trait Hope Fund is a 501(c)(3) non-profit organization whose main mission is to raise funds to facilitate research and support development of a treatment and cure for Aspartylglucosaminuria (AGU), to be the resource for doctors, scientists and families world-wide and to increase awareness of rare diseases and AGU in particular, so kids can get a proper diagnosis.

Big "Thank you" to all researchers around the world for the work they did investigating AGA gene, enzyme activity and the disease. Lot of publicly available information was used to put together this site. We tried to reference the original work/articles as much as possible to make it easier to learn about AGU for anyone who wants to "dive" into this subject. 

Rare Trait Hope Fund gives grants to groups and organizations that work directly on finding a cure and/or developing a treatment for Aspartylglucosaminuria. We do not cover indirect (overhead) costs on any research grants. If you are interested in the work related to an AGU treatment, please contact us at kids.progress(at)raretrait.com. 

Together we will be able to achieve our goals and make the difference.

Our Mission:
The Rare Trait Hope Fund is dedicated to the diagnosis, education, testing and finding cure for Aspartylglucosaminuria and other rare disorders.