Rare Trait Hope Fund only sponsors events and other marketing opportunities that appropriately further its mission to accelerate international scientific research aimed at finding a cure and improving the lives of all children and young adults living with AGU.
Event hosts must submit a completed Event Registration Form to Rare Trait Hope Fund as a first step in the event planning process. Staff members are available to help hosts complete the form and provide consultation as needed.
Rare Trait Hope Fund can assist in coordinating press and media releases.
When financially responsible, Rare Trait Hope Fund must be involved in negotiating and signing contracts.
Rare Trait Hope Fund will make its best effort to provide t-shirts, sponsor brochures, invitations, printing, postage, information brochures, banners, balloons, videos, or other fundraising supplies.
Rare Trait Hope Fund will assist the host in obtaining event insurance when necessary. Most often, this can be secured under the organization’s existing policy. At least one week’s notice is needed to provide insurance certificates for specific events.
Expenses must have advance approval when they are to be paid by Rare Trait Hope Fund. Rare Trait Hope Fund strives to keep expenses less than 25% of funds raised.
Advance ticket purchases must be paid and sent directly to Rare Trait Hope Fund at the time of purchase.
All solicitation letters must direct the donor who donates by check to make their check payable to and sent directly to Rare Trait Hope Fund at P.O. Box 741155 New Orleans, LA 70174
Fundraising events must comply with all relevant state and local laws as necessary. Event hosts should determine if special raffle licenses are required.
All checks must be made payable to Rare Trait Hope Fund. A minimum of two people is required to be present at locations where money is collected. A copy of the accounting records of the event’s income must go home with one person, and the money must go home with another person. The funds and accounting records must be sent separately to Rare Trait Hope Fund within 15 days of collecting funds or 15 days following an event for accounting purposes and timely acknowledgement letters.
Rare Trait Hope Fund